About The Power of the Patient Project
The Power of the Patient Project is a completely volunteer national initiative headquartered in Cherry Hill, New Jersey. It has been designated by the National Library of Medicine as one of the only digital libraries in the country devoted exclusively to education and information on patient rights, The Project is anchored by its website. The website offers patients a comprehensive list of reliable sources for finding information on medical conditions and treatment options as well as an extensive library of video segments featuring prominent physicians, healthcare providers, and healthcare leaders discussing how to improve the patient experience. The website also features informational video segments on the current issues in the areas of patient rights and patient advocacy. In addition to the website, The Project offers an outreach program that provides live educational workshops to patient support groups as well as a personal research service where medical librarians will research questions for patients on medical conditions and treatment options and compile easy to understand articles that can be sent by mail or sent electronically.
How It All Began ...
Work on creating The Power of the Patient Project, the National Library of Patient Rights and Advocacy, began in 2014 when a group of talented on-camera hosts, videographers, and segment producers spent the next three years, filming over 120 video interviews with some of the most prominent physicians and healthcare leaders in the country. This initial project was called Health and Wellness. In the spring of 2017, Bob Kieserman and a select group of his healthcare administration students at the Arcadia University School of Global Business, near Philadelphia, collaborated to expand the project and
created the current website and introduced the community outreach efforts of the Project. The mission of the Project was to educate consumers about their patient rights, help patients become more proactive with healthcare decisions, and teach patients how to have a more interactive dialogue with their healthcare providers. Based on the Medical Library Association guidelines for providing consumer and patient health information, the goal of the Project has always remained to transform patients from healthcare accepters to better healthcare consumers and help foster a better relationship between patients and their healthcare providers.
In the summer of 2017, the students became the Founding Executive Advisory Board and Bob Kieserman assumed the role of the Project's volunteer executive director. In August of 2018, the Project was designated the National Library of Patient Rights and Advocacy, and is recognized by the National Library of Medicine.
Our Dedicated Volunteer Leadership Team
Bob Kieserman is the Founding Executive Director of The Power of the Patient Project. Bob served as the Program Director of the Health Administration Program and was a member of the senior faculty at the Arcadia University School of Global Business for over 20 years. Throughout his 35 year career, Bob taught and mentored thousands of men and women preparing them for careers as physicians, nurses, rehab therapists, hospital administrators, nursing home administrators, and medical practice administrators. Throughout his impressive career, he practiced as a healthcare consultant, and is also currently a practicing medical librarian focusing on consumer health information librarianship. Prior to joining Arcadia, Bob was the CEO of one of the country's leading continuing medical education companies for over 15 years, and prior to that served as Assistant to the Deans of the Temple University School of Medicine. He was also a Special Lecturer in Medical Practice Management at the Temple University School of Podiatric Medicine, the Temple University School of Medicine, and the Howard University College of Medicine. Highly respected by both clinicians and administrators throughout the country, he is the author of four books on medical practice management and over 200 articles on the issues of healthcare management and patient rights. Bob's passion is educating patients about their rights and empowering patients to be better consumers of the healthcare delivery system.
Media personality Kearni Warren talks to Bob Kieserman about The Power of the Patient Project and patient rights.
Dr. James Trainor, Medical/Bioethics Editorial Consultant
Near the end of his surgical career, cut short by recurrent injuries to his dominant hand, Dr. Trainor’s brother was diagnosed with an aggressive form of brain cancer. Dr. Trainor witnessed, first-hand, the short comings of our health care system particularly as it pertains to respect for human dignity and patient autonomy. His brother’s last words to him the morning of his passing were; “I’m not ready to die”. It was then that he decided to further his education and enrolled in Drexel Universities innovative Doctor of Nursing Practice program and concurrently matriculated in the University of Pennsylvania’s Master’s in Bioethics course of study.
James Trainor, DrNP is a bioethicist, a nursing leader, and a patient advocate. Dr. Trainor graduated from Thomas Jefferson University with his undergraduate Nursing Degree in 1992 with honors. Early on in his professional career, Dr. Trainor enjoyed much success as a member of the orthopedic, neurologic, and spinal surgery teams at Thomas Jefferson University Hospital. He desired further career advancement and obtained certification and training as a Registered Nurse First Assistant in Surgery (RNFA).
As an RNFA, Dr. Trainor worked alongside several world-renowned joint replacement surgeons. He was also appointed as Joint Replacement Team Leader and Clinical Staff Supervisor of the Rothman Institute, in Philadelphia Pennsylvania. Dr. Trainor was afforded the opportunity to travel extensively, across the United States and abroad, aiding in the instruction of operating room techniques and procedural efficiencies.
Media Production Staff
Dove Sinclair, Director of Media Production
Dove Sinclair is a senior at Wagner College, majoring in arts administration with a minor in film and media. She likes to fence and has been the captain of her school's Division One fencing team for three years. Outside of school, she has a passion for creating interview based documentaries and reading thought provoking books. When in her hometown, Dove teaches CPR to the community and medical professionals in need of recertifications. Dove oversees all media production for the Project, coordinating the scheduling of interviews, working with our team of hosts to prepare them for their interviews, and selecting the many different topics that are addressed in our video library. She herself is also an important member of our broadcast staff bringing depth to our video segments.
Charlotte Grinnell, Senior Segment Anchor/Producer
Charlotte Grinnell is an experienced talk show host. A graduate of Elon University in May 2020 with a major in Cinema and Television Arts and minor in Psychology, she served as a main host on Elon’s weekly broadcast, Etalk. Her on-air work included interviewing guests and moderating discussion panels on various topics while also helping to conceptualize, produce and present news and entertainment segments. Prior to joining The Power of the Patient Project, she worked as a Communications and Marketing Intern with some major organizations. On camera, Charlotte combines her passion for impactful storytelling with her dedication to advocacy as one of the professional hosts of our video segments. Charlotte oversees all of the public relations work for the Project including social media and coordinating stories on the Project in the print and broadcast media. She is also the host of Perspectives, the web series.
Demi Vaughn, Senior Segment Anchor/Producer
Demi Vaughn is a graduate of Ball State University’s College of Communication, Information, and Media. She has a degree in Journalism with a minor in Sociology, and has a concentration in Mass Communication’s. She served as the president of the Ball State chapter of the National Association of Black Journalists. She started her journalism career writing for local newpapers and magazines. Her byline can be found in the Indianapolis Star, Indianapolis Recorder, The Ball State Daily News, Black Press USA, Indiana Minority Business Magazine, Hope For Women Magazine and Ball Bearings Magazine. She has a passion for the entertainment and beauty industry. Her devotion to storytelling has led her to interviewing Korey Wise and Kevin D. Richardson both from the Central Park Exonerated 5 and reality stars like Claudia Jordan. Demi's passion for patient advocacy is obvious from the segments she hosts.
Cennet Kurtev, Senior Anchor/Producer
Cennet Kurtev is a talented Film and Media Communications major at Pace University. Jen is an accomplished film maker and equally comfortable in front of the camera, as well. She is passionate about providing information to people to help them make better healthcare decisions, and chooses to contribute her talents to The Power of the Patient Project because she believes it is a unique and special opportunity to help others. In addition to her work in media production, Jen is also a Pharmacy Technician and has worked with hundreds of patients in that capacity, bringing an understanding of patient rights and advocacy to her work with the Project.
MILLI Long, Senior Anchor/Producer
MILLI Long can truly say she was born for a career in entertainment. Born to a radio dad and stay at home mom, she began public speaking at the tender age of 7 and has been using her voice to move people ever since. MILLI has done a little of everything in the broadcasting field - reporting, producing, radio announcing, emceeing live events, writing and editing, as well as voiceovers. Her journalism background helped her land several roles, so she's teasingly been dubbed "America's Reporter". As a host, she’s been honored to share the exceptional stories of various guests from authors and mothers to popular actors and musical groups. MILLI is poised, professional, and articulate with a fun-loving, energetic spirit. She’s a lifelong learner who has a natural curiosity about the world around her. MILLI is the mother of 4 beautiful children and surrogate mom to 3! In her spare time, MILLI loves to sing, dance, travel, and read. The Power of the Patient Project is honored to have MILLI as a member of our broadcast team.
Elizabeth Linden, Senior Anchor/Producer
Elizabeth Linden is a retired special education teacher with 25 years of experience. She has a bachelor’s degree in Special Education and a master’s degree in Health Psychology. Liz has been an advocate for the educational needs of special education students throughout her career as well as an advocate for her own medical needs as a person with a rare headache disorder. Out of necessity, she learned that she needed to become an expert regarding her own medical condition. She is pleased to be a part of our broadcast team and believes passionately in the importance of trust in the doctor-patient relationship and for the patient to feel empowered to give feedback. She also strives to encourage patients and to learn about their treatment and ask for more help when we need it.
Kaci Iuvura, Senior Anchor/Producer
Kacie Iuvara is a podcaster, performer, and longtime storyteller. She has trained at Ohio Wesleyan University, the American Conservatory Theater, and the London Academy of Music and Dramatic Art. She also has extensive experience with the American medical system, both as a patient and an avid learner. As a member of our broadcasting team, her goal is to empower others to achieve the best care and treatment possible.
Amanda Cunha, Senior Researcher
Amanda Cunha is a Senior Psychology Major at the University of Pittsburgh. Along with her major, she has also completed minors in Writing and Communications. At Pitt, she has served in many leadership positions including being a peer mentor to incoming freshmen students, a peer tutor for various subjects, and, most recently, the public relations officer for the University’s Psychology Club. She also has vast experience working with children and families. It is through her combined experience that she has decided on a career in Medical Communications and aspires to work in patient advocacy, especially that of reproductive health. Amanda researches resources for our Patient Resource Guide, and also provides assistance to our media production team in identifying issues that will be addressed for our video library and podcasts.