About The Power of the Patient Project
The Power of the Patient Project is a completely volunteer national initiative headquartered in Cherry Hill, New Jersey. Designated by the National Library of Medicine as one of the only digital libraries in the country devoted exclusively to education and information on patient rights, The Project is anchored by its website. The website offers patients a comprehensive list of reliable sources for finding information on medical conditions and treatment options as well as an extensive library of video segments featuring prominent physicians, healthcare providers, and healthcare leaders discussing how to improve the patient experience. The website also features informational video segments on the current issues in the areas of patient rights and patient advocacy. In addition to the website, The Project offers an outreach program that provides live educational workshops to patient support groups as well as a personal research service where medical librarians will research questions for patients on medical conditions and treatment options and compile easy to understand articles that can be sent by mail or sent electronically.
How It All Began ...
Work on creating The Power of the Patient Project, the National Library of Patient Rights and Advocacy, began in 2014 when a group of talented on-camera hosts, videographers, and segment producers spent the next three years, filming over 120 video interviews with some of the most prominent physicians and healthcare leaders in the country. This initial project was called Health and Wellness. In the spring of 2017, Bob Kieserman and a select group of his healthcare administration students at the Arcadia University School of Global Business, near Philadelphia, collaborated to expand the project and created the current website and introduced the community outreach efforts of the Project. The mission of the Project was to educate consumers about their patient rights, help patients become more proactive with healthcare decisions, and teach patients how to have a more interactive dialogue with their healthcare providers. Based on the Medical Library Association guidelines for providing consumer and patient health information, the goal of the Project has always remained to transform patients from healthcare accepters to better healthcare consumers and help foster a better relationship between patients and their healthcare providers.
In the summer of 2017, the students became the Founding Executive Advisory Board and Bob Kieserman assumed the role of the Project's volunteer executive director. In August of 2018, the Project was designated the National Library of Patient Rights and Advocacy, and is recognized by the National Library of Medicine.
Our Dedicated Volunteer Leadership Team
Bob Kieserman is the Founding Executive Director of The Power of the Patient Project. Bob served as the Program Director of the Health Administration Program and was a member of the senior faculty at the Arcadia University School of Global Business for over 20 years. Throughout his 35 year career, Bob taught and mentored thousands of men and women preparing them for careers as physicians, nurses, rehab therapists, hospital administrators, nursing home administrators, and medical practice administrators. Throughout his impressive career, he practiced as a healthcare consultant, and is also currently a practicing medical librarian focusing on consumer health information librarianship. Prior to joining Arcadia, Bob was the CEO of one of the country's leading continuing medical education companies for over 15 years, and prior to that served as Assistant to the Deans of the Temple University School of Medicine. He was also a Special Lecturer in Medical Practice Management at the Temple University School of Podiatric Medicine, the Temple University School of Medicine, and the Howard University College of Medicine. Highly respected by both clinicians and administrators throughout the country, he is the author of four books on medical practice management and over 200 articles on the issues of healthcare management and patient rights. Bob's passion is educating patients about their rights and empowering patients to be better consumers of the healthcare delivery system.
Bob discusses patient rights with media personality Kearni Warren (2014).
Near the end of his surgical career, cut short by recurrent injuries to his dominant hand, Dr. Trainor’s brother was diagnosed with an aggressive form of brain cancer. Dr. Trainor witnessed, first-hand, the short comings of our health care system particularly as it pertains to respect for human dignity and patient autonomy. His brother’s last words to him the morning of his passing were; “I’m not ready to die”. It was then that he decided to further his education and enrolled in Drexel Universities innovative Doctor of Nursing Practice program and concurrently matriculated in the University of Pennsylvania’s Master’s in Bioethics course of study.
Dr. Trainor’s current and future scholarship and practice is focused on helping patients at the end of their lives retain their dignity through empowerment. There are numerous ethical dilemmas that surround end-of-life issues. His goal is to make an impact on the field of bioethics and the delivery of patient care. Ethical dilemmas are pervasive in the daily practice of healthcare, and end of life issues, particularly those surrounding chronic illness and palliative care, are still not always handled sensitively by healthcare professionals. He is always striving to change the system for the better. As a doctoral prepared nurse, his desire is to educate aspiring healthcare professionals, at all levels, to enhance their own ethical and moral conscience in the provision of patient care as well as to educate and inform the recipients of care as to their inalienable rights.
James Trainor, DrNP is a bioethicist, a nursing leader, and a patient advocate. Dr. Trainor graduated from Thomas Jefferson University with his undergraduate Nursing Degree in 1992 with honors. Early on in his professional career, Dr. Trainor enjoyed much success as a member of the orthopedic, neurologic, and spinal surgery teams at Thomas Jefferson University Hospital. He desired further career advancement and obtained certification and training as a Registered Nurse First Assistant in Surgery (RNFA).
As an RNFA, Dr. Trainor worked alongside several world-renowned joint replacement surgeons. He was also appointed as Joint Replacement Team Leader and Clinical Staff Supervisor of the Rothman Institute, in Philadelphia Pennsylvania. Dr. Trainor was afforded the opportunity to travel extensively, across the United States and abroad, aiding in the instruction of operating room techniques and procedural efficiencies.
GinaMarie (Mangiaracina) Cestari is our National Director of Public Relations. Gina has worked in healthcare communications for more than 20 years. She has demonstrated success with designing and implementing public health, public relations and public affairs initiatives. Her areas of expertise include advocacy, coalition development, consumer campaigns, issues management, partnerships, policy and public health. Gina has provided counsel and support for a range of clients that have included food & nutrition groups, healthcare nonprofit organizations, hospital alliances, insurers, medical device, mental health organizations and pharmaceutical organizations.
Gina has supported notable brands in a wide array of disease areas including cardiovascular disease; food & nutrition; gastrointestinal health; mental health; obesity & diabetes; and women’s health. Among her pharmaceutical and medical device achievements, Gina has worked on behalf of her clients in several areas including brand communications, data communications, internal communications, patient ambassador programs, medical conferences, strategic counsel and issues management.
Her experience in advocacy and coalition development includes building the Strategies to Overcome and Prevent (STOP) Obesity Alliance – an initiative based at George Washington University’s Milken Institute School of Public Health (GW). More than a decade later, STOP continues to be a diverse coalition with consumer, provider, government, labor, business, health insurers and quality-of-care organizations united to drive innovative and practical strategies that combat obesity. Gina and her team created and integrated all communications platforms for the coalition including e-newsletter, webinars and social media platform presence. The success of the coalition and its advocacy efforts is captured in Essential Case Studies in Public Health: Putting Public Health into Practice, a textbook designed for public health curriculum in colleges, authored by Gina and her colleagues.
Prior to founding GM Communications Consulting, she served in leadership roles at several spublic relations agencies. Gina received her B.A. in Journalism and Media Studies from Rutgers University’s School of Communication and Information